Epilepsy 12

Established in 2009, Epilepsy12 has the continued aim of helping epilepsy services, and those who commission health services, to measure and improve the quality of care for children and young people with seizures and epilepsies. Round 3 is underway.

Epilepsy 12

Epilepsy Passports

This paper record gives essential up-to-date information about a child or young person’s epilepsy. This includes their emergency care plan, medication history and key professional contacts. 

Epilepsy Passports

Valproate - Guidance on use in women and girls of childbearing years

The RCGP is a lead contributor to new practical guidance supporting doctors and health professionals around valproate use in women and girls of reproductive years. It is based on latest guidance from the MHRA and provides 'pragmatic' advice on situations that arise in clinical practice.

Valproate: Get the guidance

NICE Guidelines: Epilepsy in Children and Young People

This quality standard covers diagnosing, treating and managing epilepsy and seizures in children and young people (under 18). It describes high-quality care in priority areas for improvement.


Drug Watch Epilepsy Action

Up to date advice about stocks and availability of anti-epileptic drugs.

Drug Watch
SUDEP and Seizure Safety Checklist

A free evidence based tool supporting Clinicians in discussing risk with their Epilepsy patients during consultations and epilepsy reviews

It considers risk factors associated with epilepsy mortality, including (but not restricted to) Sudden Unexpected Death in Epilepsy (SUDEP)

Register Here
Epilepsia online access for members

ESNA has a group subscripition to Epilepsia journal which can be accessed by members.

Click on the link below and then enter the username and password shown below.

Username - HOOPER063S

Password - Wiley12345

Access library..
Adults: Epilepsy Specialist Nurse Competencies

The epilepsy specialist nurse competencies set out the professional knowledge and skills needed to become an epilepsy specialist nurse working with adults with epilepsy.

Download document
Adults with Learning Disabilities: Epilepsy Specialist Nurse Competencies

The epilepsy specialist nurse competencies set out the professional knowledge and skills needed to become an epilepsy specialist nurse working with adults with learning disabilities with epilepsy.

Download document
Children and Young People: Epilepsy Specialist Nurse Competencies

The epilepsy specialist nurse competencies set out the professional knowledge and skills needed to become an epilepsy specialist nurse working with children and young people and people with epilepsy. 

Download document
Best Practice Guidelines for the Administration of Buccal Midazolam

This document is intended to serve as a guideline for those purchasing as well as delivering training in the administration of Buccal Midazolam. It is hoped the guideline will provide assistance to the local regulatory authority and to help establish a national standard of minimal training.

National Society for Epilepsy

Consistent dispensing of anti-epileptic drugs is crucial to people with epilepsy.

Small changes in drug formulation can result in devastating consequences for people living with the condition: a single breakthrough seizure can result in the loss of a driving licence, affect employment and cause serious injury and harm.

With this in mind, the National Society for Epilepsy (NSE), in association with Eisai Ltd, has produced a new booklet about anti-epileptic drugs, which aims to help epilepsy management and adherence,

The handy A6 size booklet ‘anti-epileptic drugs’ contains full-colour photos of the packaging and formulations of all the currently licensed branded versions of anti-epileptic drugs in the UK.

Designed to be used by healthcare professionals, this booklet will aid discussions with patients, and serves as a useful visual reminder when identifying, reviewing and changing epilepsy medication.

On NSE website:  

Also see a full list of resources on their site :

Download from Google Play
New Scottish Intercollegate Guidelines (SIGN) for Epilepsy

The Scottish Intercollegiate Guidelines Network (SIGN) have recently produced a new and updated clinical guideline for the Diagnosis and management of epilepsy in adults.  SIGN 143 is a clinical guideline based on the most up to date evidence available to us. Evidence is reviewed by clinical and academic experts in epilepsy and carefully graded to represent the strength of the available evidence.  The presence of high-quality meta analysis or systematic reviews with a low risk of bias may receive a level "A" rating whereas data where the evidence is supported by weaker studies may receive a "D" level rating.

This system allows the practitioner to consider the strength of data informing their practice and makes clear areas that require future research.

 Since the SIGN 70 publication in 2003 we have seen the number of specialists in epilepsy increase with more specialist clinics becoming available to people with epilepsy.  The range of drugs available has expanded and we have more surgical and non-pharmacological treatments than ever before. Initially the new guideline was going to be updated but in fact only stopped short of being an entirely new guideline. The section on diagnosis and treatment was updated and new areas included in

2015 include psychiatric comorbidity, sleep, and mortality.  Women's health, models of care, provision of information, how to implement the guideline and the evidence base have all been completely revised.

 We hope that this guideline will be used by people managing epilepsy and those involved in commissioning epilepsy services including general practitioners, practice nurses, epilepsy specialist nurses, neurologists, obstetricians, psychologists, psychiatrists, public health professionals, relatives of people with epilepsy and the people with epilepsy themselves. Whilst a very practical day to day tool for the individual involved in providing care it is also an aspirational guideline, aiming for the very best in epilepsy care.

There is also an apple app, and if you go to the SIGN website you can download it.  This document allows you to consider carefully what you do and why you do it.  It is also an excellent audit tool as you can audit how many of the recommendations you are meeting in your practice.  My only word of caution is that it is aspirational  in some areas and it would be almost impossible with current staffing in epilepsy nursing to meet all the recommendations and practice points.  However, it is what we think patients should have and we should be aiming for it.

Quick reference guide

Full guideline

SIGN website